I emailed with the scientist today and he said that some people don't have their WOW moment until after their treatment is all over. For some it happens before it's over and everyone is a little different. I guess after having this for over 18 years, I can't expect to feel like Wonder Woman in 32 Days.
For the good news: For several weeks, I've had the floaters back in my vision. They started just after I went off my Azithromycin. Now they are intermittent and not as severe as when I first went off my antibiotics.
My neck pain is not nearly as severe it would normally be for being off antibiotics this long. Oddly, it's after I do my treatment in the evening that it starts. It's fairly minimal and I've only had to take Advil a couple times for it at night. Sometimes I don't have pain at all during the day.
When I go off my Azith, within a couple days the ringing in my ears comes back (tinnitus). I haven't had the ringing but a few times and not at all the past few days, so I feel like the treatment may be sort of finally taking over where the Antibiotics left off. That puts me at 'stable' I guess :)
There are a couple symptoms that have been plaguing me some that I hadn't' had in a really long time. Long enough that I forgot what it was like to have them. One is not being able to find a word. Fishing around in my brain for it, and my brain throws out a bunch of substitute words that have similar meanings or sounds, but not that word. I was trying to find the phrase 'by product' and my brain was stuck on 'side effect'. I had to have my husband help me and he finally came up with it :)
The other one is I think due to my adrenal exhaustion . It's going to be tough for me to determine how well this cure is effecting me because adrenal exhaustion (worse than adrenal fatigue) has many, many symptoms that overlap with Lyme. Some are joint pain, exhaustion, memory loss, skin problems, digestive issues, depression, lack of energy or ability to deal with stress.... the list goes on.
In about a month, we are leaving for a week long hunting/camping trip several hours from home. It's been years since I've done something like this and I'm in a panic. I get to a state where I feel like I can't breath. I am totally suffocating and the panic is just overwhelming at the thought of all the things I have to do and remember to be gone and all the worries about the house and animals. When I get to that point, my brain shuts down. It's almost like when someone has such extreme physical pain that they pass out. My brain just is not getting the adrenaline it needs to handle any sort of pressure, so it cuts off the thoughts. I feel like I am drowning and it's just the worst feeling ever.
I am not currently on an adrenal support supplement, because when I took Drenamin a couple years ago for it, it didn't help at all. My LLND had me on oral hydrocortisone ( your adrenals are supposed to make 80 mg of it daily. When you have adrenal exhaustion, they don't make it) It definitely worked and made me feel happy and wan to do things and in a better mood... I liked that part. But the major con was that I gained A LOT of weight and it made my face really puffy. Plus when it wore off in the evening, it was horrible. So, I guess I should try and find a good Adrenal support supplement.