It's been a crazy couple of months and I don't know where the time has gone. I run through blog posts in my head and never get to them. I am going to try and do a quick overall summary of what's happening:
Hunter continues to do amazing. He has spent maybe 5 nights at home in the past 2 months, because he's out being a summer boy :) He comes home frequently to get a change of clothes and check in or work on his car. It's funny to me how I am conditioned (I should say my brain is conditioned) to expect certain things. It's like a habit; it's hard to erase certain expectations from people and replace them after years and years of them behaving one way.
In the case of Hunter, this applies because he was home a lot this past week to work on his car. Graffiti week was this past week. It's all old cars, car shows, drags, and a big cruise on Saturday night ( last night). So I saw Hunter a lot this week because he was home working some bugs out of his car and getting it ready to go in the cruise. He had several challenges and was having some major problems with his car backfiring, tried several things, had to run back and forth for parts, took the distributor apart, checked plug wires, even took it for a test drive with Brian and they broke down about a mile down the road and I had to get the truck to tow his Chevelle home. So you can imagine the pressure of wanting his car to be running perfect, trying everything and not being able to figure it out. This went on all week long, right down to the wire on Saturday. Friday night he was up until after midnight out in the shop working on his car. I have to say that I didn't even realize I expected an angry, frustrated kid that "didn't want to talk about it" was short tempered and unapproachable. So when I got the opposite, I was shocked. In spite of all that, he was in good spirits, had a positive attitude, kept working patiently away and the problem...... I mean, I would have been screaming and throwing tools daaayz ago, so I can't say I would have blamed him.
I say all this to give you an example of exactly the 180 his whole personality has taken and has completely continued on. He has been out camping too many times to count, traveled to the coast and all over, no doubt losing tons of sleep. And he sounds and looks so happy and positive and 'normal' that you would never guess in a million years he had been so sick for all these years. It's truly incredible.
Colby is doing good as well. He has familial type 4 hyperlipidemia. What this means is that he has a gene that causes him to have very high cholesterol, as his body cannot get rid of the lipids in his blood at that rate of a normal person. A couple years ago he was having what he thought was a heart attack, (severe chest pain: angina) was overweight, exhausted all the time and when he would run in PE, had asthma like symptoms: couldn't breath. It's very scary. Come to find out, this condition can lead to a heart attack and stroke. Once our amazing doctor discovered this, he said to keep his carbs down to 40-60 carbs per day. That's less than a bowl of cereal! But we really cut all that back and he immediately felt a LOT better and lost a bunch of weight. However, since he has been off his gluten free diet, he can eat a lot more bread, cereal, etc. and has been somewhat ignoring his diet.
To top that off, he had a concussion last fall and his fingertips are numb, which means there is a dislocation of the vertebrae in his neck ( C1 and or C2). After the accident, he started to repeat himself a lot and forget things he had told people. I need to get him in to someone that really knows their stuff, but so far I can't find anyone local. He has had two meltdowns since completing his Lyme N treatment and I am not sure if they are gluten related, concussion related or just plain teenager stuff. The last one was about a week ago and he did have a good reason for it, so it could have just been normal emotional stuff. I'm hyper sensitive to that, though after years of gluten meltdowns.
I want to update myself now, but I'm sick of typing. Really quick: having some 'episodes', but overall have felt really great the past month. I had a lot of energy and have been doing tons of work outside like painting my shop all by myself, working on painting and customizing a new computer desk, things like that. I have been on the Metogenics Adrenogen for 3 months now and I just ran out about 5 days ago. That same day, the weather changed. We got a bunch of clouds in and it's been raining on and off for about 4-5 days now. I have been exhausted and so sleepy. My Adderall is not working well and I have no desire to do anything. My head feels like it's stuffed with cotton, some mild headaches in the morning. Just feeling crappy. This almost always happens with the bad weather, so I always feel better in the summer. So, not sure if it's running out of the Adrenogen, the weather or both. It seems like just as I'm starting to really feel great and think I've turned a corner, I get knocked back down.
I still take Acylcovir daily for may bells palsy/viral symptoms. Like clockwork, they were really not bad the past week or so and then I ovulated and immediately my eye is all swollen and red and in spite of taking the Acylcovir, I still have facial pain and swelling, although not as severe as if I didn't take it at all. I also have a headache on that side of my brain and the teeth on my left feel like I got punched in the face from time to time. Comes in waves. Not fun.
The Nystatin is not giving me hives anymore, just nausea and itching. I won't say more than that.....Google the side effects and you'll know what I mean :) I am supposed to take it twice a day, but only do it in the evening. I take so many other things that can cause nausea, and I don't need to be debilitated by severe nausea and/ or stomach pain day in and day out, so I don't want to risk mixing it with, say zinc, Acylclovir or my other Thorne Research supplement the new doc has me taking that makes my stomach hurt. And I just can't remember to stop and take something every hour. So, in a nutshell, still ups and downs for me, but the "ups' this past month have been WAY up, so that's a good thing :)
I postponed my Dr. visit that was scheduled for early August. I am just not going to be able to get my bloodwork done in time or complete my cortisol test. For that, I have to go off my Adderall for 4 days prior to the test. If I'm being honest, it was easy to say I could do it, but now I am having some major anxiety about it and I really don't want to think about it this summer at all. So I rescheduled my Dr. visit for early Sept, but really, I'll probably postpone it again. I have to take the cortisol test 6 weeks before my visit because it takes so long to get it back.... I can't see that happening in the next week.