Yesterday while talking to me, I noticed those symptoms were back again and he has not been in the greatest mood. He was very exhausted and laid on the couch all day Friday after getting home from school about 11:30 am. Granted, he got up at 5:20 am the day before, drove 2.5 hours to work all day on a construction site and then drove home, so I am sure that was most of the reason he was so tired. Today he was not in the greatest mood either. No talkative or friendly. I'm just really discouraged that I have not seen that happy, amazing Hunter that I had for a couple weeks in early January.
However, the good news is that he has not had any more angry 'black cloud' moments, has not missed any school due to exhaustion or had mono-like symptoms. He has been in a moderately good mood for him. I guess the best way to describe it is 'consistent', and it is DEFINITELY an improvement over his pre-Lyme-N moods. He has had much better and more 'constant' energy. Other than the day after he worked all day, it seems he has been able to keep up a steady pace with his physical and social activities that he had before.
Colby has totally falling off the wagon on his gluten free diet: And he's still hanging in there. He has had really bad insomnia, which I suspect is from all the gluten he is eating, but he has also had a cough/cold and been coughing a lot at night and had a stuffy nose that I know has played a role in the trouble sleeping. I hear him coughing at night, so it's hard to be sure if it's just the gluten. He has started eating really late at night again, and is up several times. He goes to bed at 9pm, but is up and down until at least midnight. To be fair, he has always kind-of been like this. As a baby, he quit taking naps before he was a year old and was insanely busy and physically active.
The good news is that I have NOT seen the crazy, hyperactive, annoying behavior. That was the immediate, first indicator that he'd had gluten. It was unmistakable, in-your-face symptom that got on my last nerve that happened every single time he had gluten. If he came home from a friend's, I always knew immediately if he'd eaten gluten, because he was a different person. So far, zero of that. He's calm and focused and mellow, and he has had gluten every day, multiple times per day. So, that's a TEN in my book!